Dr. Diana Driscoll, Clinical Director of POTS Care, explains how the clinic differs from others, and explains a bit about her recovery and that of her children.
Just Diagnosed with POTS?
The Top 4 Must-DosThe Top 4 things I would do first if my children or I were just diagnosed with POTS
How We Treat
A tough disorder like POTS (Postural Orthostatic Tachycardia Syndrome), a form of dysautonomia, requires a close analysis of all of your symptoms — simultaneously. This unprecedented approach can provide answers much more efficiently than traditional problem-focused medical visits.
Orthostatic IntoleranceWe evaluate all of your symptoms to help us locate the underlying… Read More
Vagus Nerve DysfunctionMany patients with POTS suffer from gastroparesis, chronic constipation… Read More
Hyperadrenergic StateMany patients with POTS are misdiagnosed with “anxiety” because… Read More
Chronic FatigueMany patients suffer from fatigue, exhaustion, exercise intolerance… Read More
Intensive, One Week Program
We offer an intensive, one week program to complete your evaluation and response to treatment. You will leave with medications/supplements needed, a summary of follow-up needed by your medical team, and dietary and exercise recommendations.
Frequently Asked Questions
No! We begin by reviewing ALL of your symptoms. Our proprietary software allows us to review every one of your symptoms and we’ll begin with a list of over 180 of them. This is an unprecedented approach to health care, but we strongly believe this approach is essential in order to locate underlying problems that have been “invisible” in most patients. Currently, most patients are shuffled from specialist to specialist, with no one looking at the big picture. Not only is that approach often unsuccessful, it can take months or years for complete evaluations.
We treat patients with a diagnosis of POTS (postural orthostatic tachycardia syndrome), Chronic Fatigue Syndrome (CFS/ME), POTS associated with EDS (Ehlers-Danlos syndrome), most Chronic Lyme disease patients, and fibromyalgia patients who exhibit POTS. Many patients who are presumed to have mitochondrial disorders (with negative genetic testing and muscle biopsies), Chronic Lyme disease (with no identification of a spirochete), or autoimmune disorders such as lupus or Sjogren’s syndrome (with no verifiable antibodies identified) are also suffering with idiopathic POTS. Misdiagnosis is common because patients present with most of the symptoms of these disorders, adding to the diagnostic challenge. Alternatively, when the cause of idiopathic POTS is correctly diagnosed, patients can begin to respond to treatment immediately. At POTS Care, we specialize in idiopathic POTS and the many conditions that mimic this disorder.
No. Many patients come to POTS Care with a firm diagnosis (the result of a tilt table test), but many come with strong suspicions of POTS in conjunction with some abnormal findings on the “poor-man’s tilt table test”. Many people have noticed some difficulty with standing or the recent onset of heart racing and/or fainting. We also reach beyond treating orthostatic intolerance and treat most of the symptoms that occur in conjunction with POTS such as extreme fatigue, gastroparesis, brain fog, tachycardia, and insomnia.
Biofeedback can be helpful to control some aspects of POTS, especially when surges of some chemicals cause a “hyperadrenergic” response of the body. These surges can easily be diagnosed as “anxiety” by the uninformed. We have found, however, that most patients have an underlying medical reason for these surges and unless this is diagnosed and treated, patients will not achieve long-lasting results. We will focus on identifying and treating these medical issues, and help patients with techniques to help control autonomic symptoms until the medical problems can be fully addressed. Addressing the medical cause of these surges is our focus.
Yes. We can see children as young as eight years old. Ask yourself if your child is able to sit for testing (an eye examination or dental exam, for example) and is capable of answering questions about symptoms. If so, your child is likely old enough to be seen and treated.
Yes. Most patients with these diagnoses suffer with autonomic dysfunction and the comorbid symptoms of extreme and chronic fatigue, brain fog, gastroparesis and other gastrointestinal complaints, headaches, neck aches, and hyperadrenergic tendencies, among other symptoms. We evaluate and treat all symptoms of these conditions by looking for the underlying medical problems. We do not provide long-term antibiotics or IV antibiotics, but instead, look for the underlying cause of a lowered immune system which can result in chronic infections.
Personal experience with these conditions offers insight into symptoms that can be difficult for other doctors to understand. POTS Care is the culmination of ten years of research (and personal experience) into this challenging disorder, focused on locating objective markers of illness. Dozens of physicians have contributed to the research and the treatment algorithms needed for this challenging condition. Not content with symptomatic treatment, the research began by looking for contributing factors that have been missed previously (such as problems with histamine and intracranial pressure).Our doctors believed that there were medical conditions causing symptoms, and that for the vast majority of patients, this condition was not a psychiatric disorder. At POTS Care, you need not fear that you will be diagnosed with “anxiety” or other somatic illnesses. We use “real science” and “real medicine” – no snake-oil to try to locate the medical causes for of illness. Our research and personal experience taught us to reach far beyond traditional testing to find answers, and to examine all symptoms and signs of illness simultaneously. This is an unprecedented approach to these conditions, but is often essential for proper treatment.
Yes. Mast Cell Activation Syndrome is a common comorbid presentation in many cases of idiopathic POTS and we can assist you in its treatment. If you should have the rare mastocytosis or mast cell leukemia, however, you should instead see an oncology (cancer) and/or mast cell specialist. We will also be evaluating you closely to try to find out if mast cells are the only (or even the primary) histamine-producing cells that may be contributing to your symptoms.